Australian Epilepsy Research Register

If you would like to join the Australian Epilepsy Research Register (AERR), please complete the form below.

All members of the research register will be invited to complete the Australian Epilepsy Longitudinal Survey (AELS). This survey takes place every three years and captures the experiences and any changes to those experiences of people with epilepsy, their families and carers. The Australian Epilepsy Research Register tracks changes of how epilepsy impacts on the quality of life of people with epilepsy, their families and carers and these results are used to argue for better policies and health services.

All research carried out is confidential and anonymous. There is no obligation to take part in any of the research studies offered.

Your name and address and any other identifying details are not published or used in the results of the research.

When you register you will receive regular newsletters containing the latest research and your contributions to the surveys will help other people living with epilepsy.